It is with much sadness that I make this post. Our family received Megan on Monday afternoon (9/21) with much joy and anticipation of the life we would have together. Within hours of bringing Megan to the hotel, Tamra noticed that Megan would not respond to our voices or any noise for that matter. I was unwilling to believe it and shrugged it off to have something to do with a cold that Megan had. We put Megan to bed for the night and amazingly she slept the entire night. The problem was that in the morning she did not awake when we called to her. Clapping over her head did not even wake her up. She awoke only when we picked her up. We arranged with our adoption coordinator to take Megan immediately to a doctor. The doctor could not give us a specific diagnosis, only a general observation due to the official procedures required by the Chinese adoption agency. Only an official children's hospital can make a diagnosis for an orphan. His observation was that Megan was either near or completely deaf with some other medical issues. He stated that it was possible, given that Megan was an orphan from the southern rural area of China, that her birth mother had a disease such as rubella during the first trimester of the pregnancy. Tamra took Megan to the children's hospital over the next two days with the aide of our adoption coordinator. They evaluated Megan's developmental delay and hearing. The results were not real encouraging. Basically, her developmental skills ranged anywhere between 1 month (fine motor) to 9 months (gross motor) with her mental development at around a 3 to 5 month old. Megan is about 20 months old. The hospital's assessment is consistent with what Tamra and I had observed in the few days we had with her. Institutionalized orphans are inherently developmental delayed, but this with her deafness and poor eyesight probably would not cause the delay we see in Megan. The results of the hearing test indicated that both ears were functioning correctly. Megan's congenital deafness was then a result of either cochlear nerve damage or her brain itself, not being able to translate sound. In most cases, it is not treatable. As you all know Megan had severe esotropia. When I took into account the combination of congenital esotropia, nerve deafness and developmental delay, I could not help but think back to what the first doctor had said about congenital rubella syndrome. That was not his official diagnosis, but the children's hospital was not going to provide any more test to pinpoint the problem. It was at this point that our adoption coordinator presented us with some options. He stated that based on the observations and tests that the children's hospital did perform, we had more then a compelling case to petition the Chinese adoption agency for another child due to the inadequate medical record that had previously been given to us. Our coordinator stated that from time to time this happens. We were presented with this article by a family member while we were going through the decision. http://www.theadoptionguide.com/options/articles/lost-daughters
Many of you know that Tamra and I have searched out to find a special needs orphan to bring into our family. Tamra and I have even had discussions to the possibility of more then one. We have always contended however, we will take one day at a time with that decision. I personally felt that if we continued with the adoption of Megan that it would preclude us from ever adopting again. I further thought that there may be a chance that Megan may be adopted by another family, one that will know how to better care for her needs. Needless to say, this is a very difficult situation for our family, especially Tamra and the boys who are with us (Trent and Jared). How does one come to a decision such as presented to our family? Not without a great amount of angst. Today (9/24), I drafted a letter to the Chinese adoption agency to petition them for another special needs girl. We delivered the letter and returned Megan at the same time. As of now, we do not know if our request for another child will be granted. We will find out more in the next few days and keep everyone posted. Please keep Megan in your thoughts and prayers.
Chris
Big Ocean
15 years ago
Chris, Tamra, Trent, & Jared,
ReplyDeleteSo many love you and are praying for you here. We are praying specifically for you to experience in a real way the comfort of your Heavenly Father-whose love is immeasurable, whose compassion is unfailing, and whose power is limitless!
love,
the howard family
Chris and Family- We are sooooo sorry for your great loss. We, and so many others are praying for you. Love- The Kruegers
ReplyDelete"I love you O LORD, my strength. The LORD is my rock, my fortress and my deliverer; my God is my rock, in whom I take refuge. He is my shield and the horn of my salvation, my stronghold." Psalm 18:1-2
ReplyDeletePraying that you would find strength and take refuge in HIM alone. And praying especially for Megan.
We love you,
The Wagenleitners
Matt and I are greiving for you tonight but we know without a doubt that God is sovereign and loves you and Megan and has a perfect plan for her life. I respect you so much for making this very difficult decision because I know you made it with much prayer and concern for her. We will continue to pray that God will gift you with another little girl that will fit your family perfectly. With much love,
ReplyDeleteAmy (and Matt)
You are on our hearts and prayers deeply. The range of emotions that you have and are dealing with, the decisions you must make, and all the love you have already poured into Megan must be immeasurable. We know that you trust God to care for Megan and that He has a plan for her life and that He has a child that is meant for your family. But it sure doesn't make the journey any easier. Through your tears and heart wrenching decisions we pray that your family will be bonded together all the more. We're also praying strength and hope through this.
ReplyDeleteWe love you.
-Youngs
I am so sorry for this that must feel devastating. I know that God will care for all of you in your loss and sorrow. Please know that we and many others are praying for you. Lean into Him. He alone can hold you in His great hands of mercy and compassion.
ReplyDeletelove to you all,
Teresa and family
Chris and Tamra,
ReplyDeleteI am so sorry to hear of the difficulties you are going through. I can't even begin to understand your pain. However, I do know that our Heavenly Father is not surprised by all that is presented to you. We will be praying that you would find your comfort in Him! Love, Elise
Chris & Tamra,
ReplyDeleteI am mourning with you here, and praying to our Heavenly Father for Megan and your family as you walk through this. With love,
Jenny
Chris,Tamra & family,
ReplyDeleteWe, are lifting you all up in prayers. We, can only imagine what you are going through. We know that God has a bigger picture for your family and he will revel it at his timming.
Keep you eyes focused on him.
Trent, Bryce said to say Hi!!!!!
The Bob Davis family
Gardner family,
ReplyDeleteWe are so heart broken for you all... I'm so sorry for your loss of Megan. I know she felt your love for those moments that you spent with her! May God protect her and find her a safe and loving home fit perfectly just for her.
Tamra~ I know you heart is aching and I pray that the Lord wraps His loving arms around you during this time. I'm so thankful you have such a loving and caring husband who is your rock during this hard time. I'm praying that the Lords will be done for you and your family while you are away in search of another little girl. I know the Lord will give you the desires of your heart. We miss you and love you dearly family. Thank you for allowing us all to be apart of this process with you because as you morn we also do and as you pray we pray with you.
Stephen and Tiffany
We are lifting you up in prayer.
ReplyDeleteKevin, Ann, Mary, Sophie, Peter and Andrew Tollefson
Dear Chris and Tamra, There are no words---just my heart tender toward you as you take this path step by step. You don't walk it alone.
ReplyDeleteour love,
David and Neta
Can't imagine what it must be like to go through all this heart wrenching decision making and so far from home. What an incredibly difficult and sad situation but God will not fail to direct you and give you peace. Praying his blessing and guidance for all of you. We are trusting in his plan for you, your family, and for Megan.
ReplyDeleteWith Love,
Robynn and Family
Chris, Tamra, Trent and Jared,
ReplyDeleteAt this point I can only agree with all the others who have posted comments...We love you and will continue to pray. (I posted a comment right after Allyson but it must have gotten lost in the unknown spaces) Praying for your family at home...know they want to hug each of you! We are expectant as we wait upon the Lord with you for continued guidance in His infinite wisdom.
Love,
Darla and Tim